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Preconception with T1D type 1 diabetes

Preparing your body for pregnancy when you have type 1 diabetes is a marathon, not a sprint. I started my preconception with T1D preparations 2 years before we knew we wanted to start having children. Of course everyone’s journey will be different, and there is no one right way to do things. But I wanted to share with you what I did, preconception, to prepare my body for a type 1 diabetes pregnancy.

Preconception with T1D

1. Get Off Hormonal Birth Control

Preconception with T1D birth control

The first thing I did on my preconception with T1D journey was to get off my birth control pills. Conventional advice suggests that you get off any kind of hormonal birth control (pills, injections, implants, rings, etc) a few months before trying to conceive (TTC).

But considering I had been on the pill for 10+ years and had 3 autoimmune diseases, I figured I’d give my hormones a much needed break. I tossed my birth control pills in the trash and for the next 2 years I used fertility tracking as my main source of birth control. For me, this meant taking my morning temperature, paying attention to CM (cervical mucus), and watching for insulin resistance (see how that’s connected to ovulation in my blog post HERE). I was able to track when I was ovulating and knew to use extra precaution during that window because I wasn’t ready to get pregnant quite yet.

 

2. Get a Robot (or two)

tips to lower high blood sugar massage

My next step was to get on an insulin pump. Knowing how tight my control needed to be once I got pregnant I decided that a pump would give me the most control. I chose the Omnipod (see my reasons HERE) and it has been one of the best decision I have made in my diabetes management. Right next to getting a CGM (read about my experience with it HERE).

I made the switch about a year and a half before I knew we wanted to conceive. I wanted to feel comfortable with my robots well before conceiving. In my head I thought it would take months for me to get used to it, but in reality, the switch was pretty seamless. I didn’t experience many highs (and virtually no lows) in those first two weeks that we were adjusting my numbers to get the right ratios. And after those first two weeks of using it I already felt like a pro. So in hindsight I didn’t need as long of a time to adjust, but I’m still glad I switched when I did because the pump has given me an incredible amount of control over my blood sugar numbers.

 

3. Get A1c In Range

My Dexcom on Android Wear Watch

Have a good A1c is so important in general, but especially 6 months before you try to conceive for two big reasons:

One. Having an A1c above 7.0 decreases your fertility and increases your risk for an early miscarriage.

Two. An A1c over 7.0 can damage your eggs and negative affect your reproductive system which increases the risk of baby developing birth defects.

The healthier you are the healthier baby will be. Ideally you’d want to be 6.0 before conceiving, but anything below 7.0 will help to reduce your risks mentioned above.

 

4. Load Up on Nutrients

Bone Broth

During the first trimester you’re bound to experience food aversions and/or morning sickness. You know what the most common food aversion is? Veggies.

Crazy, right?

The food with the most nutrients and minerals is the one thing that makes you want to run for the hills. That’s why it’s important to load up on nutrients ahead of time so you can build up some solid nutrient stores for baby to pull from in those first few months.

If you can, start ramping up your nutrition or take a quality prenatal 4 months prior to conception. If you want to be really good, then start a year or two before conception.

It’s especially important for type 1 diabetics to get the following nutrients prior and during pregnancy:

Bone broth is a great source of nutrients too! I try to drink homemade bone broth as much as I can. It’s important that the bones are from humanely and organically raised chickens. Farmers Markets are a great spot to find these.

 

5. Get Thyroid In Check

If you already have a thyroid condition then you know the importance of getting your numbers in a good range. For pregnancy and preconception you’ll find that most doctors will want your TSH between 0-2. It’s also important that you levels of T4 are optimal because that’s what baby pulls from you before it can start producing its own thyroid hormones.

If you don’t have a thyroid condition, it’s still a good idea to have a blood work panel done before trying to conceive so that way you’ll know of any deficiencies (or thyroid problems) right from the start.

 

6. Read

Pump vs MDI studies

If you’re anything like me, then you LOVE information. The more books, articles, studies, seminars, and documentaries I can get my hands (and eyes) on the better. Here my top 3 favorite books on preconception:

 

7. Join Facebook Groups

Preconception with T1D facebook group

Curious what a real T1D pregnancy is like? Want to dip your toes in the water before you’re 100% committed to jumping in? Join a pregnancy group on Facebook. These are real T1D women going through all the ups and downs of a real T1D pregnancy.

I learned so much from joining these groups. Whether you sit back and quietly read everything from the sidelines, or are actively posting questions, you will learn SO much just from being in one of these groups.

There are a lot of groups out there, but my favorite, hands down is: Type 1 Diabetes and Pregnancy
These women are lightning fast to respond and are so incredibly helpful.

 

What Are The Odds of Baby Getting T1D?

Preconception with T1D baby

In a lot of the T1D & Pregnancy groups I’m in this question gets asked a lot, and for good reason. Here are the odds:

If the father has T1D the risk is 1 in 10, but if the mother has T1D then the risk drops to 1 in 25. Those odds get even better if the mother delivers the baby after the age of 25, dropping the risk down to 1 in 100, which is virtually the same as the average american. And if the mother developed T1D after the age of 11 that risk drops even lower. [1]

 

Good luck mama’s, you got this!

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Preconception with T1D pinterest

 

This post contains affiliate links. Thanks so much for supporting T1D Living!!

 

Sources
[1] Ginger Vieira, and Jennifer Smith. Pregnancy with Type 1 Diabetes. CreateSpace Independent Publishing Platform, 2017.

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Leave A Comment

  1. Rick Phillips January 9, 2018 at 9:04 pm - Reply

    We have come so far and I am so grateful. My mom so desperately wanted a second child in the early 1960’s. Her doctors told her she should never conceive again (she was 25 when she was DX’d with T1), and that if she did conceive the child would likely not survive and she could well die.

    Mom’s heart was broken and she longed for a second child well into her late 30’s by which time she was terribly ill. Our tech, including insulin, delivery systems and monitoring has given our community so much. Babies maybe the best thing.

    My mom passed at age 46 form complications of diabetes. My, how things have changed.

    • T1D Living January 10, 2018 at 9:46 am - Reply

      I’m sorry to hear that. Even when I was first diagnosed in 2008 some nurses told me I shouldn’t have kids. But technology changes so fast and so many advances have been made since then. It’s amazing and inspiring to see how many T1 women are going on to have healthy, beautiful babies <3

  2. Lindsey January 12, 2018 at 9:36 am - Reply

    YES! THIS! Thank you <3 I have started my preconception journey too. Planning on TTC within the next year or so. I just switched to the omnipod and have started looking into prenatals but it's so hard to find a good one that isn't tied to bigmoney. Keep making posts like this!!

    • T1D Living January 18, 2018 at 9:15 am - Reply

      Prenatals… and vitamins in general are so tricky. Trying to find a brand that hasn’t been bought by a big conglomerate is nearly impossible. You should check out SeekingHealth prenatals (i’ve never tried them but they are very popular amongst naturally minded mama’s) and Earthley’s Nourish Her Naturally herbal tincture (that’s what I’m currently using)

  3. […] I share with you my Prenatal Supplements I want to mention my preconception regimen HERE. Now that I’ve mentioned that, let’s dive right into my prenatal supplements. Not too much has […]

  4. […] my post earlier this week (Preconception with T1D) where I recommended some of my favorite preconception books, a lot of you asked me what my […]

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